These past two days have been a blur. There is a chance that Jonah will be discharged and sent home tomorrow. The only stumbling block to this is if he continues to struggle with his oxygen saturation levels. His levels are steady and in the high 90’s and 100% when he is awake but when he’s sleeping they drop into the 80’s (usually high 80’s) which isn’t good. He may just be getting so relaxed that he takes breaks from breathing leading to his oxygenation levels dropping.
These last few nights (Sat, Sun, Mon) we have been juggling our time with the other children at home and also having one of us stay the night at the hospital with Jonah. Hopefully this will be the last night. When Jonah does come home he’ll be on two medications, one called lasix which will help with the valve leakage and another one to help stabilize his blood pressure (I don’t remember the name of this one).
Today Jonah had his echo (basically an ultrasound for his heart) and we are awaiting the results on that, this is the test that will let us know how ‘mild’ or ‘moderate’ the leakage from the valves are at this point; in time it will tell us if he will need to have another surgery in the future or not. He also gained a couple of ounces in the past day, so hopefully that is a sign of him finally beginning to grow and thrive. He also seems to want to eat more than before so we are going to begin to increase his volumes; he also isn’t tiring out so quickly like he used to. All great signs that the patching of the holes in his heart was successful.
Last night I stayed with Jonah and I was so blessed. I read scripture to him and we just hung out. I just thank the Lord for this little blessing whom He has entrusting us with. Tonight I ran some milk up to him just in case he needed it overnight and I finally got to see him smile again in the short time I was there…this made the quick trip more than worth while, even if he doesn’t end up needing the extra milk. To Christ be all the Glory! ~ D