Days 5 & 6
Jonah chillin’!
These past two days have been a blur. There is a chance that Jonah will be discharged and sent home tomorrow. The only stumbling block to this is if he continues to struggle with his oxygen saturation levels. His levels are steady and in the high 90’s and 100% when he is awake but when he’s sleeping they drop into the 80’s (usually high 80’s) which isn’t good. He may just be getting so relaxed that he takes breaks from breathing leading to his oxygenation levels dropping.
Measured the incision before bath time…its 3 inches long!!!
These last few nights (Sat, Sun, Mon) we have been juggling our time with the other children at home and also having one of us stay the night at the hospital with Jonah. Hopefully this will be the last night. When Jonah does come home he’ll be on two medications, one called lasix which will help with the valve leakage and another one to help stabilize his blood pressure (I don’t remember the name of this one).
Holding my ‘cordless’ baby before bath time on Monday
Today Jonah had his echo (basically an ultrasound for his heart) and we are awaiting the results on that, this is the test that will let us know how ‘mild’ or ‘moderate’ the leakage from the valves are at this point; in time it will tell us if he will need to have another surgery in the future or not. He also gained a couple of ounces in the past day, so hopefully that is a sign of him finally beginning to grow and thrive. He also seems to want to eat more than before so we are going to begin to increase his volumes; he also isn’t tiring out so quickly like he used to. All great signs that the patching of the holes in his heart was successful.
Jonah with his new lion that he loves gazing at…
Last night I stayed with Jonah and I was so blessed. I read scripture to him and we just hung out. I just thank the Lord for this little blessing whom He has entrusting us with. Tonight I ran some milk up to him just in case he needed it overnight and I finally got to see him smile again in the short time I was there…this made the quick trip more than worth while, even if he doesn’t end up needing the extra milk. To Christ be all the Glory! ~ D
JOURNEY WITH JONAH 
I am standing on the firm belief and word that Jonah is healed and whole in Jesus name! I pray complete and perfect lung function, perfect saturation down to the cellular level, and perfect brain function to regulate his breathing while sleeping!! Amen!!
Jonah’s story is such a testimony to the Lord and something I am learning about Liam is that things might be very rough, and doctors may try to bring death and despair, but the Lord is BETTER than that! And each trial in our son’s lives, is just one more thing they can proclaim the glory of the Lord over! Jonah is a mighty fighter and such a sweet beloved son of God! If you need ANYTHING, even just to vent as I did, DONT hesitate! I love you guys!!!!! ps- is it just me, or does Jonah get cuter by the day?!
Goooooo Jonah :)
Praying for continued healing for your precious jonah! I, too, have a sweet Jonah, born with DS, 2 holes (atrial and ventricular), with Dr. Hammill as his cardiologist and Dr. Peeler as his surgeon!! how cool!! our little guy’s surgeries were last year (April 2010) and he was born in February 2010. Praising God for Dr. Peeler’s skills and praying for a quick recovery!!
Ruth McCall
Wow! What a lot of similarities between our little guys! Maybe our sweet Jonahs will get to meet someday. :)
I too have been blessed by Jonah’s story, was a testimony of obedience. God is holding Jonah and his whole family in the palm of His hand. How comforting it is to know that kind of love. I pray God will continue to bless Jonah and his family.
Judi Edmonds