JOURNEY WITH JONAH

Happy Birthday Jonah!

What a year indeed!  I want to begin with an update on what’s been going on with Jonah.  I haven’t posted anything since Jonah went in to have his feeding tube put in.

Here's what Jonah's feeding tube looks like

Here’s what Jonah’s feeding tube looks like

The feeding tube is working as advertised!  Jonah’s last weigh in before getting the feeding tube was 12 lbs 1 oz.  This week Jonah weighed in at 15 lbs 6.5 oz!  Jonah has gained over 3 pounds in a little over 6 weeks which is astounding!  We are definitely encouraged.

The other issue going on with Jonah right now is with his lungs.  Last week we saw a pulmonologist to see if we could find out why Jonah is still on full-time oxygen.  There seems to be increased blood flow in one of his lungs.  Not really sure what that means yet, next week he will go in for a CAT scan which will hopefully give us some answers.  Ever since he had RSV in January he has had the low oxygen saturation levels deeming it necessary for the full-time use of oxygen.

I can’t believe that it has already been a year since Jonah’s birth.  27 days in the NICU after birth.  Open heart surgery at 11 weeks. A quarantined winter and oxygen tank at home after getting RSV.  A feeding tube in March.  Even though it feels as if this year has flown by it has been a tough year for our family.  Alot of changes since Jonah’s birth – not bad changes or anything – just changes.

We celebrate Jonah’s birthday, with family, cake and presents—A happy, loving little boy who is cherished by his family!

The Birthday Boys -Jonah turned 1 on 4/26 and Ben turned 16 on 4/25

The Birthday Boys -Jonah turned 1 on 4/26 and Ben turned 16 on 4/25

Jonah may The Lord bless you and keep you;
the Lord make His face to shine upon you and be gracious to you;
the Lord lift up His countenance upon you and give you peace. 

I look forward to the next year in front of us, knowing that God is with us whatever is thrown at us.  Thank you Lord for Jonah Ananiah, he is a gift from God!

Everyone in a party hat

Hayley and Molly

Elijah’s sweet card he made for Jonah

Party man

Party man

Elijah presenting Jonah his gift

Jonah waiting to open up some presents!

Jonah waiting to open up some presents!

Zeke took this pic of himself :)

Zeke took this pic of himself :)

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2 comments on “Happy Birthday Jonah!

  1. Sheryl
    April 28, 2012

    Happy 1st Birthday, Jonah! You are a blessing to all of humanity as you bear the image of God for us all to behold! May God strengthen you, heal you, and hold you closely! Much love, Sheryl Chandler

  2. Michelle Parker
    April 28, 2012

    Happy birthday Jonah and to your family congrats on one year. May God Bless all of you with more Joy than you can contain, Say Hi to Grandma Pat for me. Your cousin Michelle Parker

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This entry was posted on April 27, 2012 by in Family, Feeding Tube, Jonah, Siblings and tagged , , , , , , , , , , , , .

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