JOURNEY WITH JONAH

Days 4 & 5

Jonah had a rough day 4.  Most of the issues came not from his heart surgery post-op stuff, but from a virus he’s picked up from Zeke.  He tested positive … Continue reading

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Day 3

Well yesterday Jonah was sedated all day and just resting up.  He did get his breathing tube removed, but he wasn’t a huge fan of the process. Then they replaced … Continue reading

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Day 2 Begins

First off all, I give thanks to God for a successful surgery and am so thankful that we found a surgeon locally that was able to repair his heart.  Also … Continue reading

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Praise the Lord!!!

Jonah’s surgeon, Dr Peeler, just stopped by and said everything went as well as it could have…repaired valve using his own tissue with just the very minor leak that we … Continue reading

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2nd Heart Surgery Today…March 26th, 2013

It’s been a long and crazy week for sure and this coming week is going to be more of the same.  Jonah went back in the OR about an hour … Continue reading

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Jonah’s 1 Year Fixed Heart Anniversary

What a difference one year can make.  Our greatest fear for Jonah from the time we found out about his heart defect in January was staring us in the face knowing that … Continue reading

July 12, 2012 · 1 Comment

Freedom

I know its been a while….here’s what’s been going on? Feeding Tube Way back on May 11th Jonah had his g-tube surgically removed then replaced with a smaller button-type device … Continue reading

July 11, 2012 · 2 Comments

Happy Birthday Jonah!

What a year indeed!  I want to begin with an update on what’s been going on with Jonah.  I haven’t posted anything since Jonah went in to have his feeding … Continue reading

April 27, 2012 · 2 Comments

Surgery a Success!

Jonah’s surgery on Friday went great.  The procedure itself probably took about 15-20 minutes.  He currently has a tube protruding out of his belly which will be there for 8 … Continue reading

March 14, 2012 · Leave a comment

Be an Advocate

It is time for me to start being an advocate for Jonah and others who have been born into this world with Down Syndrome.  (Also, those who weren’t born, but were … Continue reading

March 5, 2012 · 1 Comment

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